Panel 65. Designing Worlds, Worlding Design: The Ethics and Politics of Value Creation in Digital Health and Health Data Integration

Convenors:
Joseph Donia, Università degli Studi di Milano
Luca Marelli, Università degli Studi di Milano

See Panels and Abstracts Details

ID 276 – Borders of digital health – digital bordering practices in healthcare system in Germany
Reza Bayat, Georg-August-Universität Göttingen
Cheshta Arora, Vestlandsforsking

ID 291 – Making genomic data reusable. The case of the “data collector-analyzer”.
Quentin Dufour, Aix-Marseille Université; Centre national de la recherche scientifique

ID 796 – ‘NeuroCovid’ disease definition: technoscientific and political practices instructing the order of things
Benedetta Muda, Università degli Studi di Milano Statale
Janneke Kuiper, Katholieke Universiteit Leuven
Nicolò Caporale, Fondazione Human Technopole
Emanuele Villa, Fondazione Human Technopole
Giuseppe Testa, Fondazione Human Technopole
Luca Marelli, Università degli Studi di Milano Statale; Katholieke Universiteit Leuven

ID 799 – Digital Twins, Digital Dreams: Who Guides the Visions of Tomorrow’s Healthcare?
Elisa Elhadj, Katholieke Universiteit Leuven
Maiju Tanninen, Katholieke Universiteit Leuven
Ine Van Hoyweghen, Katholieke Universiteit Leuven

ID 811 – Inside the European Health Data Space Regulation: Following the Trail of Standards and Power
Anamika Kundu, European University Institute
Farid Mahsouli, Radboud Universiteit

ID 816 – Worlding Data Ecosystems for Rare Cancers: Tensions and Values in IDEA4RC
Claudia Egher, Universiteit Utrecht
Susan Van Hees, Universiteit Utrecht
Wouter Boon, Universiteit Utrecht